The accuracy of figures regarding the number of individuals in need of care is challenging to ascertain and that is why YoungCare is committed to contribute to close this gap. In Germany, a common measurement involves assessing the number of people benefiting from national social care insurance. Under this criterion, individuals with an officially recognized degree of care are included. Such numbers, grounded in this “legal definition,” are instrumental in determining the extent of care required. It’s essential to note that not every person with a disability necessarily requires care, and vice versa. This measurement excludes those who have not applied for benefits from social care insurance or have not undergone official examination and acceptance, irrespective of their dependency on support. Consequently, estimates of the number of people in need of care may be higher. Conversely, individuals with minimal limitations to their self-reliance can attain the lowest degree of care and are included in the overall statistic. Having all these limitations in mind, there were officially 4,546,814 persons in need of care in Germany in 2021, constituting approximately 5 percent of the German population.
Of the people in need of care, around 15% (679,753) fall outside the categories of children and older adults, aligning with the target group of this research: younger adults. Within this target group, the number of individuals living at home is even higher, with 95% (645,765) of those aged 20-59 not residing in a full-time residential care home. Consequently, they rely on informal care and/or ambulant care services.
The National Report provides a comprehensive overview of the landscape of informal care services and caregivers in Germany for individuals aged 18 to 64. It delineates the needs and challenges faced by the YoungCare target group while offering practical support and examples of best practices. In Germany, the interviews involved six caregivers, two younger adults in need of care, and one expert, with a predominance of female caregivers. Only one person identified his son as the primary caregiver. Four of the caregivers and care-dependent individuals were under the age of 50, while three were 50 years or older.
Partner organizations from Germany, Italy, Lithuania, the Netherlands, and Portugal collaborate to shed light on the often precarious situation of young adults requiring care and those who care for them.
For a detailed exploration of these findings, please visit the German National Report here https://youngcare.eu/wp-content/uploads/2023/12/YoungCare_NationalReport_Germany_Final.pdf.