YoungCare Guidance: Orientations for Younger People in need of care and their informal carers

“…The person in a wheelchair is just as important as the person behind them…”.

The YoungCare project’s guide targets younger people in need of care, between the ages of 18 and 64 who have experienced a drastic event, either since birth or childhood, accident, or disease, that has impacted the management of their daily lives, and their informal caregivers.

Considering how challenging it can be to find suitable care services and support for younger people, this guide provides examples of good practices, solutions, and strategies that informal carers may consider.

For this purpose, desk research, national reports, and interviews researching the circumstances of young adults in need of care and their informal caregivers have been used, among the partner countries (Portugal, the Netherlands, Lithuania, Italy, and Germany. Their personal experiences may be of help to others in similar situations, as well as multiple suggestions to support your informal carer role.

This guide considers and offers suggestions regarding life-work balance, self-help groups, and counselling services, dealing with society stigma or adaptation of housing. There are suggestions on how to communicate more effectively, avoid conflicts, and recommend taking care of both your physical and mental health, consider external help and provide some information about the legal framework.

The YoungCare project acknowledges how large the age range of the target group is and how this care dependency may vary greatly, leading to different challenges. It can be very hard to accept someone close has a life-changing medical condition, and how to approach the next steps. Nevertheless, there are some tips on how, at a national level, informal caregivers can look for some help.

If these topics interest you, please read the Compendium here

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